Iraqi baby Laveen to receive the gene therapy worth Dh8 million

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Laveen-family-2

Nevin Al Sukari - Abu Dhabi - Parents and sister of Laveen Ibrahim (in stroller) pose for a photo.

Iman Abdullah Al Ali, Staff Reporter

Al Jalila Children's Specialty Hospital in on Wednesday revealed that it received the world’s most expensive gene therapy worth Dh8 million that had been ordered for the Iraqi baby Laveen Ibrahim.

This was after His Highness Sheikh Mohammed Bin Rashid Al Maktoum, Vice-President and Prime Minister of the UAE and Ruler of Dubai had undertaken to provide the medical treatment for Laveen who is suffering from spinal muscular atrophy.

Laveen was diagnosed with Stage II Spinal Muscular Dystrophy (SMA), a genetic disease affecting the central nervous system, peripheral nervous system and voluntary muscle movement (skeletal muscle).

Baby-Laveen-1Baby Laveen seen sitting in her father's lap in a family photo.

Without that one–time life-saving injection that can cure her SMA and reverse the symptoms, her condition would have seriously deteriorated, according to competent medical reports.

Laveen is expected to receive the injection on Thursday morning, and she will be subject to observation round the clock. The rehabilitation programme will continue for three months.

It will include rehabilitation sessions, physical therapy, laboratory analyses to follow-up developments of the child's health condition and monitor the therapy’s effects.

Dr Mohammad Al Awadi, Executive Director of Operations, confirmed that the injection arrived on Wednesday, and the toddler Laveen would receive the injection on Thursday (March 4, 2021).

He also noted that Laveen’s case is the sixth to receive this injection at hospital.

“She will subject to integrated treatment and rehabilitation for three months,” he added.

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