So-called long covid There could actually be four different syndromes, the scientists said, warning that the number of people suffering from “debilitating” long-term after-effects of will increase infection.
Some people are still suffering symptoms Seven months after infection, those who initially had mild illness may have worse persistent symptoms than those who needed intensive care.
Even children can suffer, researchers said.
In the meantime, some people live with a “roller coaster of symptoms” that “move around the body.”
Researchers from the National Institute for Health Research, who reviewed the evidence available, said persistent Covid symptoms examined reports from people of all ages and backgrounds.
They said that people at a lower risk of serious illness and death from Covid-19 cannot be assumed to have a lower risk of persistent Covid-19.
Scientists said that more work is needed to help those who suffer, as they said that many “are not believed” when they seek help.
Persistent symptoms can include shortness of breath, chronic fatigue, “brain fog”, anxiety, and stress.
In the meantime, others may have suffered permanent organ damage.
Some have reported “floating” symptoms of having a disease related to part of the body – such as the respiratory system, brain, cardiovascular system, and heart, kidneys, intestines, liver or the skin – which later only wears off. New symptoms appear in another part of the body.
Such a wide range of symptoms and diverse medical conditions make it difficult for doctors to make a diagnosis, which means it is just as difficult for patients to get access to adequate care, they added.
They also said they didn’t like the term “long covid” as it could mean missing some patients struggling with persistent after-effects.
The persistent Covid may not be one disease but four different syndromes, they added.
These were broadly categorized as: post-intensive syndrome, post-viral fatigue syndrome, permanent organ damage, and long-term Covid syndrome.
Some can suffer from these at the same time.
They called for anyone who believes they have long-term aftereffects to be recorded as such on their NHS records, and the health service should adopt a “work diagnosis” approach to helping those in need.
The scientists emphasized that understanding the effects was still at an early stage when they asked people with the aftermath to get involved in the research.
Dr. Elaine Maxwell, Review Author, said: “We know from a number of surveys in the UK and around the world that a significant number of people have persistent effects following Covid-19 infection.
“The list of symptoms is huge and covers every part of the body and brain.
We believe the term “Long Covid” is used as a capsule for more than one syndrome, possibly up to four.
“We have heard of people who are unable to work, study or care for family members for a few months after their initial infection.
“We believe the term ‘Long Covid’ is used as a capsule for more than one syndrome, possibly up to four.
“And we believe that the lack of distinction between these syndromes can explain the challenges people face in believing and having access to services.
“Some people suffer from classic symptoms of critical illness, others from fatigue and brain fog in a way that is compatible with post-viral fatigue syndrome.
“Some people have clear evidence of permanent organ damage caused by the virus, especially lung and heart damage.
“However, a significant group has debilitating symptoms that do not fit any of these three categories. They describe the roller coaster of symptoms that move around in the body. “
She added that there are “real” mental and psychological health problems for some people, including anxiety and depression.
Understanding the differences between the syndromes is critical to patient recovery, she added.
She said that cluttering the gaps in knowledge about the lingering effects need to be filled so that people can get the best support.
“In the coming months, the number of people with long-term Covid is likely to increase,” she added.
“People without a clear diagnosis told us that the healthcare system often does not believe them.
“Those who have been diagnosed in other parts of the service and not always recognized.
“Just last week we were told that someone who had been diagnosed with Covid by his family doctor for a long time and who is now in the seventh month (sick) has called an ambulance because of a new symptom, fainting and dizziness, the emergency services that it by a Panic attack was caused. “
She added that some people with mild infection may have worse persistent symptoms than those who are most seriously ill.
“There are people who have never had hospital support, never had a test, and have no record of ever having Covid, other than their own personal history. You may suffer far more than someone who has been ventilated for 21 days, “said Dr. Maxwell.
And some people who have been in intensive care don’t have persistent symptoms, she added.
Dr. Maxwell continued, “The reason we don’t like the term (long Covid) is because we think it’s too vague.
“We know long haul is an American term. In the long term, Covid is more of the British.
“And what they all have in common is that they experience weakening systems over a long period of time.
“But our point is that there are subdivisions in it. And if you use just one broad term, you’re overlooking the distinctions, and that affects both research and the advice people get. “
It is important that urgent investment be made in researching patients who have not been hospitalized to understand the causes and possible treatment
Health officials have estimated that 60,000 people could suffer from the effects of Covid-19 in the long term.
Claire Hastie, Founder of Long Covid Support Group, said, “The report highlights the immense complexities and far-reaching effects of Long Covid, physical, psychological, financial and social – even on those who have not been hospitalized.
“Recognizing the difficulties many face in accessing health services is critical to addressing this and securing help for those experiencing debilitating symptoms.
“It is important that there is urgent investment in research into patients who have not been hospitalized to understand the causes and possible treatment.”
Professor Stephen Powis, Medical Director of the NHS said, “While this is a relatively new virus and we are learning more every week, it is now clear that it can have a huge impact on the lives of patients and NHS staff are working on It is difficult to respond effectively with new specialist centers for long Covid to meet these new patient needs. “
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